Opportunity
Federal Register #30Day-27-1291
CDC information-collection clearance for Fragile X caregiver surveys and public-health survey testing
Buyer
Centers for Disease Control and Prevention
Posted
November 02, 2026
Identifier
30Day-27-1291
The CDC notice seeks OMB clearance for two public-health information-collection projects, not a purchase of products or services. - Government buyer: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention (CDC), National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP). - Projects: - Fragile X syndrome data collection: caregiver surveys at three funded U.S. clinic sites for people aged 40 or younger with full-mutation Fragile X syndrome; at least 200 participants per site, 600 total. Topics include diagnosis, health and behavior, communication, adaptive abilities, healthcare, education, transition planning, social participation, future planning, caregiver support, demographics, and strengths. Estimated burden: 200 annual hours. - Cognitive and pilot testing: testing of survey questions, formats, protocols, software, and data-collection methods for the Behavioral Risk Factor Surveillance System (BRFSS) and other NCCDPHP programs. Methods may include in-person, telephone, mail, and web activities. OMB Control No. 0920-1291; estimated burden: 11,450 annual hours. - Participation is voluntary; the notice describes respondent burden rather than a contract price. No OEMs, vendors, products, or procurement services are identified.
Description
The Centers for Disease Control and Prevention submitted the Generic Information Collection Request for Cognitive Testing and Pilot Testing for the National Center for Chronic Disease Prevention and Health Promotion to OMB for review and approval. The generic clearance supports cognitive and pilot testing of information collections, including those related to the Behavioral Risk Factor Surveillance System and other NCCDPHP programs. Testing may assess survey questions, formats, protocols, software, and data collection methods. The notice provides an additional 30 days for public and agency comments.