Utah Public Procurement Place U3P #JM27-105

Utah Parkinson's Disease Registry Management and REDCap Database Services

This opportunity involves the Utah Department of Health and Human Services contracting with the University of Utah Neurology Department for the continued management and enhancement of the Utah Parkinson's Disease Registry (UPDR). - Government Buyer: - Utah Department of Health and Human Services, Division of Purchasing, and Healthy Aging Program - Utah Legislature (budgetary oversight) - OEMs and Vendors: - University of Utah Neurology Department (sole source provider for registry management and database services) - Products/Services Requested: - Management and operation of the Utah Parkinson's Disease Registry, including: - Data collection and surveillance on at least 1,000 Parkinson's patients annually - Operation and enhancement of the electronic REDCap database for secure data storage and reporting - Staff recruitment and management (Principal Investigator, PD scientist/epidemiologist, data coordinators, database scientist) - Outreach to healthcare providers and rural counties - Advisory committee activities and performance reporting - Compliance with HIPAA and data security standards (audit logging, encryption) - Website fees, data storage, and educational events - Unique or Notable Requirements: - Sole source procurement justified by the University of Utah's unique expertise and existing infrastructure - Data must be securely managed and owned by DHHS, with strict HIPAA compliance - Annual surveillance and reporting requirements, with a focus on increasing awareness and compliance among healthcare providers - Funding supports both personnel and non-personnel costs (e.g., outreach, travel, database maintenance) - Use of the REDCap platform for electronic data management

Description

This solicitation is a notice of intent to award a contract without engaging in a standard procurement process for the Utah Parkinson's Disease Registry. The contract involves providing an electronic REDCap database to collect and manage Parkinson's Disease related data, supporting surveillance, reporting, and research activities. The University of Utah Neurology Department is the selected contractor due to their existing management of the database and the impracticality of transferring it. The contract includes funding for staff, outreach, data management, and compliance with data security and HIPAA standards.

View original listing