Simpler Grants.gov #CDC-RFA-DD-26-0222

CDC Cooperative Agreement for Spina Bifida Data Collection and Protocol Implementation

The Centers for Disease Control and Prevention (CDC), Division of Birth Defects and Infant Disorders within the National Center on Birth Defects and Developmental Disabilities, is seeking applications for a cooperative agreement to advance care for spina bifida patients. - Government Buyer: - Centers for Disease Control and Prevention (CDC) - Division of Birth Defects and Infant Disorders, National Center on Birth Defects and Developmental Disabilities - Opportunity Components: - Component A: National Spina Bifida Patient Registry (NSBPR) - Collect and analyze longitudinal clinical data on children and adults with spina bifida in specialized clinics - Emphasis on data management, quality assurance, and dissemination to improve clinical decision-making - Component B: UMPIRE Protocol Implementation - Implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for young children with myelomeningocele - Focus on improving urinary and kidney system management through data collection and analysis - Products/Services Requested: - Longitudinal data collection and analysis services for spina bifida patients - Protocol implementation and evaluation services for urinary and kidney health management - Notable Requirements: - Applicants must demonstrate access to relevant patient populations and data collection capabilities - Alignment with CDC priorities and responsiveness criteria for each component - Eligible applicants include government entities, educational institutions, businesses, and nonprofit organizations - No specific OEMs or commercial vendors are named, as this is a research and data collection grant

Description

This Notice of Funding Opportunity (NOFO) has two components. Component A aims to collect high-quality longitudinal data on children and adults with spina bifida who receive care in specialized clinics participating in the National Spina Bifida Patient Registry. Component B focuses on implementing and evaluating the Urologic Management to Preserve Initial Renal Function Protocol for young children with spina bifida to improve urinary and kidney system management. Recipients will collect and analyze data to better understand health outcomes and share findings to improve care. The funding supports government, education, business, and nonprofit organizations.

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