Federal Register #HRSA23077

HRSA Awards Funding to Establish National Newborn Screening Stakeholder Workgroup

This award from the Health Resources and Services Administration (HRSA) supports the establishment of a National Newborn Screening Stakeholder Workgroup. - Government Buyer: - Agency: Health Resources and Services Administration (HRSA) - Sub-agency: Maternal and Child Health Bureau - Office: Division of Services for Children with Special Health Needs - Award Recipient: - Association of Public Health Laboratories - Purpose and Scope: - Establish and convene a national workgroup of newborn screening experts and stakeholders - Support the Recommended Uniform Screening Panel (RUSP) by reviewing and recommending conditions for inclusion - Address national-level newborn screening issues, including genomic sequencing and data collection - Develop findings, reports, and recommendations for HRSA and the Secretary of Health and Human Services - Workgroup will meet at least three times annually and include diverse stakeholders (clinicians, researchers, public health experts) - Funding and Duration: - $700,000 in supplemental funding - Project period spans five years, with potential for additional funding based on performance - No OEMs or product vendors are involved, as this is a service-focused award for convening and supporting a national workgroup

Description

HRSA is providing supplemental funding to the National Center for Newborn Screening Systems Excellence (NBS Excel) to establish a national newborn screening stakeholder workgroup. This workgroup will facilitate the consideration and recommendation of conditions for inclusion in the Recommended Uniform Screening Panel (RUSP) and address national issues related to newborn screening. Membership will include a broad range of newborn screening experts and stakeholders. The award recipient will convene the workgroup, develop findings, reports, and recommendations for HRSA's review, which will then be forwarded to the Secretary of Health and Human Services for final decisions on RUSP updates.

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