Simpler Grants.gov #HRSA-26-092

Hereditary Hemorrhagic Telangiectasia (HHT) Center Program Solicitation

This opportunity from the Health Resources and Services Administration (HRSA) seeks to improve outcomes for Hereditary Hemorrhagic Telangiectasia (HHT) through a national center program. - Government Buyer: - Health Resources and Services Administration (HRSA) - OEMs and Vendors: - No specific OEMs or vendors are named in this solicitation - Products/Services Requested: - Clinical partnership and care coordination services - Clinician support and diagnostic strategy services - Development of a de-identified, aggregate patient data registry for HHT - Notable Requirements: - Focus on expanding access and coordination of care for HHT patients - Support for clinicians in identifying and diagnosing HHT - Creation of a national patient data registry to improve understanding and treatment - Unrestricted eligibility for applicants - No cost sharing or matching required - Estimated funding amount is $2,900,000 for one award

Description

The Hereditary Hemorrhagic Telangiectasia (HHT) Center Program aims to reduce illness and death related to HHT by partnering with clinical centers to expand access and coordination of care. It focuses on creating innovative strategies to support clinicians in identifying and diagnosing HHT cases. Additionally, the program seeks to develop a de-identified, aggregate patient data registry to better understand this rare disease and its treatment outcomes.

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