Opportunity
Simpler Grants.gov #CDC-RFA-DD-26-0025
CDC Solicits Proposals for Autism and Fragile X Syndrome Data Collection and Resource Development
Buyer
Centers for Disease Control - NCBDDD
Posted
August 25, 2025
Respond By
April 24, 2026
Identifier
CDC-RFA-DD-26-0025
NAICS
541715, 813212
The Centers for Disease Control and Prevention (CDC), through its National Center on Birth Defects and Developmental Disabilities (NCBDDD), is seeking proposals to improve understanding and support for individuals with autism and Fragile X Syndrome (FXS) and their families. - Government Buyer: - Centers for Disease Control and Prevention (CDC), National Center on Birth Defects and Developmental Disabilities (NCBDDD) - Scope of Work: - Conduct surveys with autistic teens and young adults using SEED (Study to Explore Early Development) Phases 1-3 cohorts - Clinic-based enrollment and data collection for at least 200 eligible persons with FXS per clinic - Develop and disseminate public health materials to healthcare providers supporting FXS patients - Requirements: - Applicants must have documented access to SEED participant data or collaborative agreements with entities that collected such data - Demonstrated capacity to reach and enroll populations of people with FXS and their families nationwide - No specific OEMs or commercial vendors are named, as this is a cooperative agreement focused on research and public health services - No product purchases or part numbers are specified; the opportunity centers on data collection, analysis, and resource development
Description
This NOFO aims to gather unique information to better understand the resources and opportunities needed to improve long-term outcomes for people with autism or Fragile X Syndrome (FXS) across their lifespan. It includes three components: Component A involves surveys of autistic teens and young adults to assess service needs and impacts; Component B focuses on clinic-based enrollment and data collection for people with FXS; Component C is about disseminating public health materials to support healthcare providers in assisting patients with FXS. The goal is to reduce morbidity, mortality, and economic impacts while improving health and well-being.