NIH Reporter #3OT2NS136938-01S3

Access for All in ALS (ALL ALS) East Clinical Coordinating Center

NIH's National Institute of Neurological Disorders and Stroke awarded Massachusetts General Hospital funding to coordinate a multi-center ALS research consortium and longitudinal study of people with ALS and individuals at high genetic risk.

Description

Establishes a Clinical and Data Coordinating Center, an ALS Clinical Research Consortium of 30 U.S. centers, and a longitudinal observational and biomarker study involving more than 2,000 people living with ALS and 500 healthy participants at high genetic risk. Activities include collecting clinical, biofluid, digital, and imaging biomarker data; contributing harmonized datasets to NIH ALS data repositories; community engagement; site education and training; and a Scholars Program for early-stage investigators.

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