Award

NIH Reporter #5U54NS092090-12

Pilot project

Recipient

Boston Children's Hospital

Award Amount

$114,498.00

Ceiling

$114,498.00

Awarded

July 24, 2026

Identifier

5U54NS092090-12

This award funds a pilot project under the Developmental Synaptopathies Consortium to conduct standardized pilot studies on rare neurodevelopmental disorders, enhancing collaboration and dissemination of findings.

Description

Within the Developmental Synaptopathies Consortium (DSC), this project aims to leverage the DSC infrastructure to conduct pilot studies on neurodevelopmental disorders, including TSC, PHTS, PMS, and SYNGAP1-ID, focusing on standardization, collaboration, and dissemination. The project includes neuropsychological assessments, clinical trials, biomarker studies, and community engagement to understand and compare rare genetic conditions with neuropsychiatric manifestations.

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