Award
Children's National Research Institute 5U54HD061221-20
Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (RDCRN) (U54 Clinical Trial Optional)
Recipient
Children's Research Institute, Washington, DC, United States
Award Amount
$1,496,150.00
Ceiling
$1,496,150.00
Awarded
July 17, 2023
Identifier
5U54HD061221-20
Award for clinical research consortia focused on rare diseases, specifically Urea Cycle Disorders, involving multiple NIH institutes to improve patient outcomes through research and training.
Description
The project aims to improve outcomes for patients with Urea Cycle Disorders through clinical research, training, and dissemination of knowledge. The project involves multiple NIH institutes including NICHD, NIDDK, and NCATS. It focuses on understanding pathophysiology, developing new care approaches, and training researchers.