Award
NIH Reporter #6U01DD001262-05M004
Centers for Disease Control and Prevention National Spina Bifida Patient Registry
Recipient
UT Southwestern Medical Center, Dallas, TX
Award Amount
$121,641.00
Ceiling
$121,641.00
Awarded
August 03, 2026
Identifier
6U01DD001262-05M004
Award supports the National Spina Bifida Patient Registry to continue data collection and research collaboration to improve care for individuals with spina bifida in Texas.
Description
The National Spina Bifida Patient Registry supports challenges in delivering holistic care to persons with spina bifida/myelomeningocele by providing a structured, flexible, and outcome-oriented data collection system. The registry has been active for over 25 years, engaging approximately 850-900 families across Texas. The project aims to continue longitudinal data collection, implement data quality strategies, and collaborate on research projects to address scientific gaps in the spina bifida population.