Award

NIH Reporter #6U01DD001272-05M004

National Spina Bifida Patient Registry-Lurie Children's Spina Bifida Center

Recipient

Lurie Children's Hospital of Chicago, Illinois, United States

Award Amount

$129,999.00

Ceiling

$129,999.00

Awarded

August 03, 2026

Identifier

6U01DD001272-05M004

Award for continuation of the National Spina Bifida Patient Registry to collect data, evaluate treatment outcomes, and establish best practices, funded by NCBDDD.

Description

The project involves the continuation of the National Spina Bifida Patient Registry (NSBPR) to collect longitudinal data on patients with spina bifida. The project aims to evaluate treatment outcomes and establish best practices. The award is expected to be granted by August 3, 2026, with a project duration from September 1, 2019, to August 31, 2027. The funding organization is the National Center on Birth Defects and Developmental Disabilities (NCBDDD).

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