Award
NIH Reporter #6U01DD001279-05M006
Woodward CDC NSBPR Registry 2018
Recipient
CINCINNATI CHILDRENS HOSP MED CTR
Award Amount
$130,000.00
Ceiling
$130,000.00
Awarded
August 03, 2026
Identifier
6U01DD001279-05M006
The project aims to identify and disseminate effective spina bifida care practices by expanding the registry to adults, linking registry and electronic health record data, and studying sleep-disordered breathing and early muscle testing.
Description
Funding to improve the National Spina Bifida Patient Registry through expanded longitudinal data collection, linkage with electronic health record data, and evaluation of clinical care practices and sleep-disordered breathing in people with spina bifida.