Award
Eunice Kennedy Shriver National Institute of Child Health and Human Development 5R01HD110414-03
HomeVENT (Home Values and Experiences Navigation Track)
Recipient
Johns Hopkins University
Award Amount
$667,143.00
Ceiling
$667,143.00
Awarded
August 28, 2025
Identifier
5R01HD110414-03
The HomeVENT project funded by NICHD supports the development and evaluation of a decision-support tool to aid families and clinicians in making informed decisions about pediatric home ventilation, aiming to improve preparedness and shared decision-making.
Description
This project proposes a multi-institutional implementation and evaluation of HomeVENT, a decision-support process that includes a web-based tool to help families deliberate how their home life context and values affect decisions for or against home ventilation, and a structured team deliberation tool for clinical teams to assess treatment options considering family context and values. The study aims to recruit 150 families and 300 clinicians across four diverse institutions, with outcomes measured at 1, 6, and 12 months, focusing on family preparedness, shared decision-making perception, and long-term regret and quality of life.