Award
NIH Reporter #5U01DD001298-05
Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention, Outcome Measures
Recipient
Rush University Medical Center
Award Amount
$800,000.00
Ceiling
$800,000.00
Awarded
June 27, 2025
Identifier
5U01DD001298-05
Award for a project to study the natural history of Fragile X Syndrome by collecting longitudinal data from 600 individuals across 26 clinics in the USA to support intervention development and outcome measures.
Description
The project aims to collect longitudinal data from 600 individuals with Fragile X Syndrome (FXS) across 26 clinics in the USA. Data will inform public health policy, service delivery, and long-term intervention outcomes.