Award
NIH Reporter #6U01DD001279-05M006
Woodward CDC NSBPR Registry 2018
Recipient
Cincinnati Children’s Hospital Medical Center
Award Amount
$130,000.00
Ceiling
$130,000.00
Awarded
August 03, 2026
Identifier
6U01DD001279-05M006
Award for improving the National Spina Bifida Patient Registry by expanding data collection and linking with electronic health records, funded by CDC and managed by Cincinnati Children’s Hospital Medical Center.
Description
The project aims to improve the quality of the National Spina Bifida Patient Registry by expanding data collection to adults and linking registry data with electronic health records. The project is funded by the CDC and involves multiple study sections and data linkages. The project focuses on clinical care practices, sleep disordered breathing, and health outcomes for individuals with spina bifida.