Award
NIH Reporter #6U01DD001262-05M002
Centers for Disease Control and Prevention National Spina Bifida Patient Registry
Recipient
UT Southwestern Medical Center
Award Amount
$80,000.00
Ceiling
$80,000.00
Awarded
September 23, 2025
Identifier
6U01DD001262-05M002
This award supports the National Spina Bifida Patient Registry to collect and improve data on individuals with spina bifida, aiming to enhance care and research outcomes.
Description
The project aims to continue collecting longitudinal data on individuals with spina bifida, implement data quality strategies across clinics, and collaborate with other sites to develop research projects addressing scientific gaps in the population. The National Spina Bifida Patient Registry is a critical source of information for researchers and clinicians dedicated to improving care for individuals with spina bifida.