Award
NIH Reporter #6U01DD001279-05M004
Woodward CDC NSBPR Registry 2018
Recipient
Cincinnati Children's Hospital Medical Center
Award Amount
$80,000.00
Ceiling
$80,000.00
Awarded
September 24, 2025
Identifier
6U01DD001279-05M004
This award funds a project to enhance the National Spina Bifida Patient Registry by expanding data collection and linking it with electronic health records to identify and disseminate best clinical care practices for individuals with spina bifida, aiming to improve health outcomes and quality of life.
Description
Improving the quality of the National Spina Bifida Patient Registry by expanding longitudinal data collection to adults and linking registry data with additional electronic health record data to identify clinical care practices that result in optimal health outcomes and quality of life for individuals with spina bifida across the lifespan.