Award
NIH Reporter #5U2CHL156291-07
Data Management Core
Recipient
Children's Hospital of Philadelphia
Award Amount
$1,186,451.00
Ceiling
$1,186,451.00
Awarded
August 27, 2026
Identifier
5U2CHL156291-07
Award to Children's Hospital of Philadelphia for the Data Management Core to enhance data sharing and management for Down syndrome research, focusing on infrastructure modernization and collaboration.
Description
The Data Management Core (DMC) of the INCLUDE Data Coordinating Center (DCC) aims to support the study of Down syndrome and its co-occurring conditions by developing sustainable frameworks for data sharing, management, and curation based on FAIR principles. The project will implement open-source tools, expand data processing capabilities, and collaborate with researchers to create new data products. Goals include improving data sharing practices, modernizing infrastructure, supporting new data modalities, and fostering connections with related initiatives. The team has extensive experience in large-scale data curation and NIH-funded cloud projects.